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This is Alana, a 6.5 year old girl who lives with #Canavan disease — a rare genetic disorder that takes away her ability to control her body Alana cannot sit, walk or hold things on her own, and experiences severe muscle stiffness and joint tension. But she feels. She understands. She loves when her parents are close, when someone sings to her, holds her hands, or takes her for a walk. Yet every day, her family and specialists fight for one simple thing — for her body to stay without pain💔 Sess
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