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Living with bulbar palsy means the motor neurons controlling my face, mouth, throat, and neck muscles are gradually dying off. One of the effects I'm experiencing now is weakened neck muscles. My head droops forward because the muscles can no longer hold it up properly for long periods. It's exhausting trying to keep my head upright all day. Simple things like looking at people when they talk to me or watching my kids play require constant effort. Sometimes I use a neck support to give my muscle
0:51
Living with bulbar palsy means the motor neurons controlling my face, mouth, throat, and neck muscles are gradually dying off. One of the effects I'm experiencing now is weakened neck muscles. My head droops forward because the muscles can no longer hold it up properly for long periods. It's exhausting trying to keep my head upright all day. Simple things like looking at people when they talk to me or watching my kids play require constant effort. Sometimes I use a neck support to give my muscle
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