A Family's Race To Treat Childhood Blindness: A Race Against Blindness Grants $1 Million to Bardet-Biedl Syndrome Research
A Family's Race To Treat Childhood Blindness: A Race Against Blindn…
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Not every family would celebrate a birthday by leaping off a bridge—but then again, not every family is quite like the Clapps! To mark Sienna’s 12th birthday, the family drove to Scotland for an adrenaline-filled adventure in support of BBS UK. Abi, Sienna, and Beth took on the dramatic Highland Swing, while Amy and Josh bravely faced the bungee jump—40 metres above the River Garry! The day was packed with courage, laughter, and unforgettable memories. While Amy admitted afterwards that she woul
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Bardet-Biedl Syndrome (BBS) is one of many genetic conditions that can cause RP/blindness in young children. Our son, Luke, has been diagnosed with BBS1 and is actively going blind. And thus, the birth of A Race Against Blindness, an organization dedicated to finding a cure for BBS/RP. Over the last few years we have been able to grant $5.1M towards a clinical trial actively working on a cure for Retinitis Pigmentosa. That progress is due to YOUR support. YOUR donations are making a real world d
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